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What Do I Do If I Have Lupus (or Suspect That I Might Have It)?

There is no cure for lupus, but there are steps you can take to improve your sense of well-being and your quality of life, including:

• Be Aware. Talk to you doctor, and learn as much as you can about the condition, as well as what to expect. In particular, the appearance of the lesions and scars associated with DLE can be emotionally devastating and the effects can have a dramatic negative impact on a person’s quality of life, so being prepared for these changes is very important.

• Exercise. Low-impact exercises, such as walking, swimming, and biking can help prevent muscle wasting and lower your risk for developing osteoporosis (thinning of the bones). Exercise also can have a positive impact on mood.

• Get enough rest. Pace yourself, alternating periods of activity with periods of rest.

• Eat well. People with lupus should eat a nutritious, well-balanced diet.

• Avoid alcohol. Alcohol can interact with your medications to cause significant stomach or intestinal problems, including ulcers.

• Don’t smoke.Smoking can impair circulation and worsen symptoms in people with lupus. Tobacco smoke also has negative effects on your heart, lungs, and stomach.

• Play it safe in the sun. People with lupus may develop rashes or disease flares when exposed to the sun. All lupus patients should protect themselves from the sun; wear sunglasses, a hat, and sunscreen when you go out in the sun.

• Treat fevers. Take care of fevers and infections promptly. A fever may indicate an infection or a lupus flare-up.

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• Be a partner in your care. Build an honest and open relationship with your doctor. Be patient. It often takes time to find the right medication and dosage that works best for you. Also, follow your doctor’s treatment plan and don’t be afraid to ask questions.

• Get to know your disease. Keep a record of your lupus symptoms, which parts of your body are affected and any situations or activities that seem to trigger your symptoms.

• Ask for help. Don’t be afraid to recognize when you need help and to ask for it. Consider joining a support group. It often helps to talk to others who have been through similar experiences.

 

For more articles on lupus, click here. 

For more on skin lupus and new research being conducted, please visit LupusSkin.com

Seal: A Lesson In Lupus  was originally published on blackdoctor.org

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